Our family

Our family
Curtis and Tav

Wednesday, August 3, 2011

Uggh, sorry for the delay

It has been a very crazy last few weeks. It has taken a lot of time (and pain) to get the dose adjusted correctly on Curtis' new pain pump. I wouldn't even say we are there yet, but it is better. We are having a very difficult time controlling his constant urge to use the bathroom. His doctors started him on a Prednisone dose pack for a few days to see if it will help with the inflammation and allow him time in between his constant trips to the bathroom. Lately, he has to go every 30-45 minutes, which obviously does not allow him much sleep. He has been taking some anti anxiety medications at night (Clonazepam) which seems to be helping now too. The steroids seem to be working too, but he can only stay on them for a short time (due to irritation to the stomach). We have an appointment to see the surgeon on August 11th and see if he has anything else to offer. We are also happy to announce that we have found a way to go back to Arizona. The plan for the next visit is to go back August 25th through the 28th. He will probably get his next PET scan at that time as well. He had infusion last Tuesday and actually has done very well with it this week. The dang mouth sores get him every time though.. Other news, we were denied Medicaid.. Apparently they think we have money, we clearly don't.. We will be getting on Cobra through my previous employer ($950 a month) that Huntsman and Cancer Treatment Centers of America have graciously agreed to pay half of the premiums each. HUGE HELP! Survivors at the Summit is Saturday also. It is at Snowbird and you can hike or ride the tram to the summit and fly a personalized flag in remembrance of a loved one you have lost to cancer, or someone who is fighting, or someone who has fought and won! All the proceeds go to the Cancer Wellness House. The Cancer Wellness House is a great place for patients and caregivers for support, yoga, massage, children's activities and tons more.. Here is more info on the hike

Survivors at the Summit 2011 marks the 15th year of this signature event for Cancer Wellness House, a non-profit organization dedicated to providing free resources to anyone whose life has been affected by cancer. This multifaceted event:

  • Symbolizes the challenges individuals experience when faced with cancer

  • Pays tribute to their courage and determination

  • Honors the memory of all those whose lives have been cut short by the disease

    SATURDAY, AUGUST 6, 2011
    Tribute flags honor loved ones who have faced the challenges associated with a cancer diagnosis. Personalized flags are displayed atop Hidden Peak at Snowbird at the Celebration of Life ceremony on Saturday, August 6, 2011. This event symbolize the individual “summit” each person with cancer faces and achieves. Personalized flags can be purchased for $20 each at Cancer Wellness House or by phone at (801) 236-2294. Flags sold at other locations throughout the community as well.
    Everyone living with a history of cancer, their friends and families, and those who have lost a friend or relative to cancer are invited to hike the 3.5 mile trail (or take a free tram ride) to Hidden Peak on Saturday, AUGUST 6, 2011. A sea of personalized Survivors at the Summit 2011 commemorative flags will welcome participants at the summit. Join in an inspirational Celebration of Life ceremony at the top of Hidden Peak (beginning approximately 12:30 p.m.). The celebration continues on the Snowbird Plaza Deck with the prize giveaway and activities for the entire family. Bring a picnic or buy lunch at Snowbird.
    This year, the Cancer Wellness House Board of Directors want to personally thank all of our sponsors, donors, hikers, members, survivors, and families with the third annual Pancakes on the Plaza event in conjunction with the Celebration of Life at Snowbird on AUGUST 6, 2011. From 8:00 – 10:30 a.m., CWH volunteers will team up with Snowbird’s chefs to offer steaming plates of pancakes to hikers, tram-riders, sponsors, and other participants to fuel their journey to the top of the Peak. A breakfast ticket can be purchased at the event for $4 per person. Bring your friends and family for a good, old-fashioned hiker’s breakfast while supporting families in need!
    For more information contact: Cancer Wellness house at (801) 236-2294 or visit http://www.cancer-wellness.org/.
  • 1 comment: