Our family

Our family
Curtis and Tav

Saturday, March 10, 2012

Hello to Everyone

Hello to Everyone,

This is Sharon, Shannon's mom.  Our family just wanted to let everyone know after much research the past year regarding supplemental/alternative therapies for Curtis, he would like to try the plan outlined below in addition to his ongoing Chemo.  Since most of these alternative therapies are not approved by the FDA, insurance companies do not cover the costs.  We are providing a link to a PayPal account for Curtis for anyone who would  like to help with the funds needed as outlined below.  

We would like to thank everyone for their amazing love and support over the past year!  I know Curtis and Shannon are deeply touched and forever grateful to everyone.  Please keep them in your prayers as they move forward in their amazing journey.  
The regimin includes: Cesium Chloride ($190/mo), Methylate ($70/mo), Cleansing Enzymes ($72/mo), Probiotics ($24/mo), Protandim ($80/mo), Vitamin D ($11/mo), and a product called Oxygen4Cells ($33/mo).
Here is some additional info on the products above.

We will have a donation link on the blog within the next few days if you would like to make a one time or monthly donation to help with their expenses.


  1. I've send Shannon a message through Facebook regarding programs that might help cover costs. Have you guys tried to go through any Co-pay foundations? They have grant money they give out if patients qualify with their diagnosis etc.

    Patient Access Network Foundation
    PO Box 221858, Charlotte, NC 28222-1858
    Toll Free: (866) 316-PANF (7263)

    The Health Well Foundation
    PO Box 4133, Gaithersburg, MD 20878
    Toll Free: (800) 675-8416

    Chronic Disease Fund
    6900 N. Dallas Pwky, Suite 200
    Plano, TX 75024
    Toll Free: (877) 968-7233

    The Leukemia and Lymphoma Society
    1311 Mamaroneck Ave, Suite 310, White Plains, NY 10605
    Toll Free: (877) 557-2672 (877-LLS-COPAY)

    CancerCare Co-Payment Assistance Foundation
    275 Seventh Ave, 22nd Floor, New York, NY 10001
    Toll Free: (866) 55-COPAY (866-552-6729)

    Patient Advocate Foundation
    700 Timble Shoals Blvd., Suite 200, Newport News, VA 23606
    Toll Free: (866) 512-3861

    Cystic Fibrosis Foundation
    6931 Arlington Rd, 2nd Floor, Bethesda, MD 20814
    Toll Free: (888) 315-4154

  2. Also here is another link I use for my patients (especially chemo drugs) to help and apply for programs to help with the drugs. Regardless the foundations are super helpful at finding something for patients. http://www.needymeds.org/ Shannon knows how to get a hold of me! I'd love to help out with anything, this is what I do full time.

  3. We have applied for Health well and Cancer are but they do not cover "alternative treatments". If you know of any that help with alternative and natural treatments that would be helpful.